Our son Nomaan suffers from a rare genetic disorder known as Leber's Congenital Amaurosis, due to a mutation in the gene RPE65, that causes blindness. He will soon begin a clinical trial to try and restore his vision. This is our account of the whole process from start to finish.
Thursday, August 18, 2016
Finally public!
I know I said I wouldn't be posting any longer, but this article was a long time coming. We had the opportunity to meet Christian and Elizabeth at CHOP just before Nomis procedure.
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