Gavin Stevens is a little boy who also has LCA. I have mentioned him previously in another post. His form of LCA is due to the gene NMNAT1.
Beenish has been able to speak to Gavin's Mom via Facebook, and we hope to set up a play date for Gavin and Nomi some time in the near future.
Gavin's parents have been very active in raising awareness and funds for more NMNAT1 research. They hold multiple events throughout the year.
This Friday, the 13th of September they are holding their annual Golf event at the industry Hills Golf Club in the city of Industry.
If you would like to donate, volunteer, or participate, you can get more information at www.gavinsfoundation.org or you can find their Facebook page - Gavin's Groupies.
Remember, a donation of any size can help.
Beenish has been able to speak to Gavin's Mom via Facebook, and we hope to set up a play date for Gavin and Nomi some time in the near future.
Gavin's parents have been very active in raising awareness and funds for more NMNAT1 research. They hold multiple events throughout the year.
This Friday, the 13th of September they are holding their annual Golf event at the industry Hills Golf Club in the city of Industry.
If you would like to donate, volunteer, or participate, you can get more information at www.gavinsfoundation.org or you can find their Facebook page - Gavin's Groupies.
Remember, a donation of any size can help.
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