Our son Nomaan suffers from a rare genetic disorder known as Leber's Congenital Amaurosis, due to a mutation in the gene RPE65, that causes blindness. He will soon begin a clinical trial to try and restore his vision. This is our account of the whole process from start to finish.
Thursday, December 19, 2013
Temecula Valley News
Bevi Edlund, a reporter for the Temecula Vally News, did a piece on Nomi!
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