Tuesday, March 11, 2014

Blog Shout out

I would like to give a shout out to our good friend, Kristin Smedley and her Blog.
Kristin is mother to Michael and Mitchell Smedley, who I mentioned earlier. We have had the pleasure of meeting her, her boys, her husband and daughter. What a wonderful, amazing family.
They have been working tirelessly to raise awareness and funds for CRB1.

You can read her blog here:
http://www.bikethebasin.org/kristin-smedleys-blog/

You can specifically read about the great piece she wrote about Nomi here:
 http://www.bikethebasin.org/2014/02/28/a-cure-is-possible-for-our-rare-disease-we-just-have-to-fund-our-way-there/

I'd like to close this entry with a quote from Michael - that has resonated with me since I heard it.
"It doesn't matter if I'm sighted or not, what matters is what I'm passionate about."


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